Where to find support to disability?
General Websites
◊ Perinatal Hospice
www.perinatalhospice.org
Offers general information and support for families, caregivers, and providers related to perinatal hospice. Provides information and links to order books related to perinatal hospice and bereavement.
◊ Antenatal Results and Choices
www.arc-uk.org
Provides resources for families that have received a diagnosis that is fatal or likely to be fatal. Resources include information about prenatal tests and diagnoses, lists of questions for parents to ask medical providers, and support opportunities for parents.
◊ Be Not Afraid (** Christian affiliation)
www.benotafraid.net
Serves as an online network of parents and medical providers who have experienced and/or worked with families who have chosen to continue a pregnancy after receiving a poor prenatal diagnosis. Includes personal stories, articles, and information about specific conditions and diagnoses.
