Perinatal hospice/palliative care programs and support
As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. But the ability to diagnose has raced ahead of the ability to care for these families and their babies. In a practical response, some pioneering hospitals and hospices are starting perinatal hospice or perinatal palliative care programs for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.
A perinatal hospice approach walks with these families on their journey through pregnancy, birth and death, honoring the baby as well as the baby's family. Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of hospice (see our resources pages).
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